DTC genetic testing and the role of science museums in building ethical and legal awareness
Autor | Lucia Martinelli/Marta Tomasi |
Páginas | 325-337 |
Revista de Derecho y Genoma Humano. Genética, Biotecnología y Medicina Avanzada
Núm. 49, Julio-Diciembre 2018, Editorial Dykinson, ISSN 1134-7198
© G.I. Cátedra de Derecho y Genoma Humano, Universidad del País Vasco UPV/EHU!
Rev Der Gen H 49/2018: 325-337 325
Informes / Reports
DTC genetic testing and the role of
science museums in building ethical
and legal awareness*
Pruebas genéticas directas al consumidor y el pa-
pel de los museos de ciencias en la creación de
conciencia ética y legal
Dr. Lucia Martinelli**
Senior researcher, Science communication Sector, MUSE – Science
Museum (Trento, Italy)
Dr. Marta Tomasi
Post-doc Researcher, Free University of Bozen – Bolzano and BioLaw
Project, Faculty of Law, University of Trento (Trento, Italy)
DOI: 10.14679/1207
Sumario / Summary: 1. Introduction. 2. The DTC genetic testing: new
challenges for the law. 3. ‘The genetic test supermarket’: an exhibit to
engage visitors and build awareness. 4. Conclusions. 5. References.
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* Article received on May 23, 2018 and accepted for publication September 6,
2018.
The article represents a joint reflections by the authors. Nevertheless, paragraph
2 can be entirely ascribed to Marta TOMASI. Corresponding authors: Lucia MARTI-
NELLI (lucia.martinelli@muse.it) and Marta TOMASI (marta.tomasi@unitn.it).
Authors wish to thank Patrizia FAMÀ and Paolo COCCO as co-curators of the ex-
hibition, Architect Lorenzo GREPPI for exhibition, graphic design and video
supervision, Michele LANZINGER, the Director of MUSE, for useful discussion and
Fabio PUPIN for the picture.
** Co-curator of the exhibition with Patrizia FAMÀ and Paolo COCCO.
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